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bibic (charity)

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bibic is a small charitable organization based in the United Kingdom that supports children, young people and their families who have a wide range of different conditions. The charity was founded by the late Keith Pennock who had a daughter with a learning disability. The work was derived from Glenn Doman's The Institutes for The Achievement of Human Potential (IAHP) in Philadelphia, USA.

Many of the children they work with have disorders of the nervous system, or inherited characteristics, which affect the way the body or brain develops. These include: acquired and traumatic brain injury, Down syndrome, cerebral palsy, autism, Specific developmental disorders, attention deficit hyperactivity disorder and learning disability including dyslexia, developmental coordination disorder and dyscalculia. Unlike many other organisations, bibic also works with children that have no formal diagnosis at all.[1]

A variety of therapeutic approaches are used. There is no peer reviewed research into the effectiveness of therapy for this condition.[2]

The organisation raises funds and receives no Government funding.

The charities National Assessment Centre is based at Old Kelways, just outside the town of Langport, in Somerset.[3]

Keith Pennock's book Rescuing brain injured children[4] describes the impetus for starting the organisation as his daughter, who had developmental delay. In 1970 the family travelled from the UK to Philadelphia and attended the IAHP. The family adopted the Doman-Delecato patterning technique in the UK. A precursor to bibic (BIAHP) was opened in Staffordshire later the same year, as news spread of the family and their use of the new therapy method. Local residents began to give donations and offer their time.[4] The British Institute for the Achievement of Human Potential (BIAHP) was established in 1974, with staff being trained directly at the IAHP in Philadelphia. The family and fledgeling organisation moved to Knowle Hall near Bridgwater, Somerset in 1976.

In 1979, the IAHP (under the management of Glenn Doman) were turning their interests to "well children" with the introduction of a Better Babies programme. The board of the BIAHP felt that they could not support this shift in focus and wanted to continue their work solely with children who had a brain injury, therefore through necessity the British Institute of Brain Injured Children was launched as an independent organisation in 1980 – no links with the IAHP were retained, and staff began to be trained in the UK. In 1987 a research piece was commissioned to demonstrate the effectiveness of the programme,[5] in association with the University of Surrey.

Keith Pennock resigned from his post as chief executive of BIBIC in early 1996. In 1999, research covering the period 1995-1997 at BIBIC was published.[6] In a letter to the [journal] editor,[7] the authors of the appraisal report noted that strong similarities to the Doman-Delecato Patterning method (a therapy by this point widely condemned)[8][9] remained strong despite BIBIC making revisions, and that areas of the therapy caused concern. BIBIC responded later that year,[10] informing the journal that significant changes had been made to the programme, with the appraisal report being a much-anticipated catalyst for doing so. Since these revisions and under new management the organisation has been registered as a charity, and is now known only as "bibic". Bibic remains an active organisation and also provides policy input.

Bibic now reports to base its programme of developmental therapy on more recent research[11] based on the concept of neuroplasticity, the brain's ability to undergo alterations in response to internal and external environmental changes. Bibic moved to Langport in Somerset, in 2014.[12]

References

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  1. ^ "bibic - British Institute for Brain Injured Children". North Somerset Council. Archived from the original on 13 February 2017. Retrieved 12 February 2017.
  2. ^ Margetson, Jane. "Bibic (British Institute for Brain Injured Children) therapy" (PDF). Cerebra. Retrieved 20 January 2013.[permanent dead link]
  3. ^ "Bibic". Patient.co.uk. Archived from the original on 31 July 2013. Retrieved 20 January 2013.
  4. ^ a b Pennock, Keith (1999). Rescuing brain injured children. London: Ashgrove Publishing. ISBN 9781853981111.
  5. ^ Dickerson, J.W.T.; Tingle, Paul A.; Barrington, Penny; Pennock, J.K. (1 August 1987). "Development of Brain Injured Children". Journal of the Royal Society of Health. 107 (4): 115–123. doi:10.1177/146642408710700401. ISSN 0264-0325. PMID 2443699. S2CID 39544689.
  6. ^ Royal College of Paediatrics and Child Health (1997). "A multidisciplinary appraisal of the British Institute for Brain Injured Children (BIBIC), 1995-1997". {{cite journal}}: Cite journal requires |journal= (help)
  7. ^ Morton, Richard; Benton, Sarah; Bower, Eva; Carroll-Few, Lesley; Hankinson, Janet; Lingham, Suberatnam; Onslow, Deborah; Rhead, Sue; Wallis, Sheila; Walter, Anne (13 February 2007). "Multidisciplinary appraisal of the British Institute for Brain Injured Children, Somerset, UK". Developmental Medicine & Child Neurology. 41 (3): 212–213. doi:10.1111/j.1469-8749.1999.tb00583.x.
  8. ^ Disabilities, Committee on Children With (1 November 1999). "The Treatment of Neurologically Impaired Children Using Patterning". Pediatrics. 104 (5): 1149–1151. doi:10.1542/peds.104.5.1149. ISSN 0031-4005. S2CID 17770231. Archived from the original on 3 April 2023. Retrieved 26 July 2024.
  9. ^ Pediatrics, American Academy of (1 November 1982). "The Doman-Delacato Treatment of Neurologically Handicapped Children". Pediatrics. 70 (5): 810–812. doi:10.1542/peds.70.5.810. ISSN 0031-4005. S2CID 38331238.
  10. ^ Judge, Jo (13 February 2007). "Multidisciplinary Appraisal of the British Institute for Brain Injured Children, Somerset, UK". Developmental Medicine & Child Neurology. 41 (6): 430. doi:10.1111/j.1469-8749.1999.tb00632.x.
  11. ^ May, A; Hajak, G; Gänßbauer, S; Steffens, T; Langguth, B; Kleinjung, T; Eichhammer, P (January 2007). "Structural Brain Alterations following 5 Days of Intervention: Dynamic Aspects of Neuroplasticity". Cerebral Cortex. 17 (1): 205–210. doi:10.1093/cercor/bhj138. PMID 16481564. Archived from the original on 23 April 2024. Retrieved 26 July 2024.
  12. ^ "bibic History". bibic.org.uk. Archived from the original on 12 May 2020. Retrieved 25 November 2019.
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